Another Year
Hello from Caribou Coffee Shop in Menomonie, WI,
I am back in my former hometown to visit Lydia and, hopefully, get some other needed work done over the next couple weeks. I arrived back in WI on the 22nd of December and will be here off and on until the 3rd week of January. Menomonie does not change much. It is a nice little town, but as far as towns, I believe Bloomsburg is a bit more quaint. However, I have to say my little house it Menomonie is hard to beat. We are into the last days of the year and It will be another entire year,both on the calendar, and since my father passed away. It is 14 years since his passing and I am back in Menomonie to care for and do some work I need to do for Lydia.
There is the infamous cliche about a tree falling in the woods. Somehow it seems sadly connected to the idea, if you do not remember your life, does it matter that it happened? What a pity for such an amazing lady. What I do know is she has certainly affected a number of other people and though her memory of almost all of it is gone, others will never forget her. She has so drastically changed my life. And there is a connection between my father and her. My father also suffered from Alzheimer’s Disease and I was not there to care for him as I should have. I have said to more than one person that caring for Lydia is my way of making up for those things I did not do for my father. Not to be morbid, but rather reflective, I am reminded that there are those people in our lives, who in our youth, we foolishly thought there would be another time. I have thought about my grandmother, Louise, whose pictures still graces the desk in my office at school. I can still tell you about the time I called her and spoke to her the last time. It was from a phone booth (remember those) on HWY 71 going into Carroll, IA. I should have stopped to see her before I left Sioux City. I had told her I would and then was too lazy to go over there. I never saw her alive again. That has always haunted me. At least in my father’s case, I was there a week or two before he had passed.
I have spent a lot of time with Lydia over the first few days I have been back, but today I have a stuffy nose and sore throat. The facility she is living in just got over a very bad flu outbreak, so I decided it is best if I do not visit her today. I am sorry, but as such, I have been just working on a list of tasks that is pretty long, and some of them are pretty time consuming. Caribou, where I wrote most of my dissertation is packed today. Some things are consistent here: Forrest. my old neighbor, is here; I am sitting in the back corner where I often sat when I was trying to get things done. There are a lot of new workers here, but as always, many of them hail from Minnesota.
The past few days with Lydia have been hard. I am not struggling to be patient with her at all, but rather I am just sad to see how far the dementia has progressed. Her sparkling eyes are more distant and hollow. I think that is the most difficult thing. She struggles to hear and so often she merely stares at you and giggles or merely smiles. She finds it difficult to carry on a conversation and I am not sure if is it because she cannot track well enough or she does not hear or the change (removal of medication) has created more problems. I should head to the pharmacy and see if they have restarted one of her medications, which is something we have considered.
The night before last she was so confused about where she was, where she was staying, why I was not staying there, and yesterday morning she was calling for DeeDee, her dog that has been gone for many years. I wanted to take her by her house and will probably do so, but that might be when her nephew is here. Ironically I was just speaking with the people sitting next to me in Caribou and the gentleman, whose name is Neal, lives next to Bill and Mary Ann, Lydia’s friends. Amazing the smallness of the world. I had heard about Neal because of his pizza oven.
What I have learned about Lydia’s disease is that no two people are the same. It is such an insidious thing; I am reminded of what I once wrote about my fight with Crohn’s. "What happens when the disease steals me from myself?" This disease steals Lydia from herself in a more complete and tragic way. She speaks to me as often in German now as English. Good thing I can speak German.
I was speaking with her doctor not long ago and mentioned to him that a year ago I was quite sure I could not keep her in the house during the coming year; that turned out to be true. Now I am not sure she will be alive. I am quite sure she will not know me. That will be a difficult day. It is so unfair. She has done so much in her life. I tell her regularly that she is amazing. She always answers the same way; "I am not that amazing." But most simply she is. She accomplished a great day and she managed a lot of things long after George passed away. I think he is probably very proud of what she has done. I often wonder what her parents must think from their vantage point all these years later.
Indeed, the tree might not be heard, but there was a sound; physics would tell me this. And while Lydia might be losing what memory she has and not realize how much of difference she has made, it has been a huge difference for many for such a small person.
Thanks for reading.
Michael
